CREATIVE
WRITING
WRITER: ASHLEY GROTH
"TO PROVE SOMETHING"
CONTENT WARNING: SELF-HARM; SUBSTANCE ABUSE
A short blog; but one that was calling to me to be written.
Just scrolling on TikTok on a late Monday afternoon–as one does.
Okay... ouch. I shaped my For You Page algorithm specifically to only show me the hopeful, inspiring, poetic slideshows, not the heart-dropping, soul-splitting, devastating ones. What is this doing here?? Oh well. Here we are anyway. If you're like me, you spend your life proving things. I sometimes reflect on whether every decision I have made was done to prove something to someone. I will go to extreme lengths to prove myself. Dedicate hours of my time; dedicate my life. When I was younger, I felt that one day I had to grow up to be extraordinary, or else nothing would be worth anything. I feel a lot of pressure to live up to that expectation now. The pressure of my own standards weighs on me heavier than anybody else's, though outside expectations–whether real or imagined–still pile on. It all builds up to fuel my inability to relax; my internalized shame concerning a reality where I am simply ordinary, simply nobody. Although I never felt as if there was something wrong with anyone else being that, I must remind myself as I work to dissolve this internalized shame that there is nothing wrong with myself being that either. I'm starting to realize that my compulsive need to stay busy and preoccupied 24/7 is, in itself, a self-destructive behaviour. More importantly and more pervasively though, I've always felt a compulsion–pathological, almost–to prove my suffering. Prove it to others, but once again, equally or more so to prove it to myself. I've done unsavoury actions in favour of proving my pain. I'm sorry to my elementary school friends to whom I laughed as I joked about how "water hurts" while revealing to them my slashed forearm. I'm sorry to the stranger I met my first time going to the club who wanted to kiss me but ended up listening to me unwarrantedly divulge my substance abuse habit instead. That was all a while ago now. Most of all, I'm sorry to myself for the years I spent wading and plunging deeper into my own despair; the years I spent feeding that hungry despair with the media I consumed, the things I surrounded myself with, and my comfort in what was familiar to me–misery. I can't recall whether it was in a therapy appointment or psychiatry appointment, but I remember once being asked the question, "why do/did you self-harm?" I looked inside myself and searched for the reason why, but I came up short. Amidst my struggle to identify why, the therapist/doctor began to name off a list of reasons for me to choose from. "To feel in-control, to distract yourself from the emotional pain with physical pain, to bring yourself back from dissociation and remind yourself you're real, to punish yourself, to feel something, etc." Any of those felt like they could be true, sure. But none of them felt like the real, exact reason why for me. Eventually, I realized that a key reason as to why I personally engaged in self-destructive behaviours like self-harm and substance abuse was to prove my own suffering to myself. Engaging in one of these behaviours gave me tangible, physical proof of my pain–proof that could not be refuted, minimized, or dismissed. A marker of a true low. A marker of severe pain. A marker of going through something really, really bad. My running theory is that this need to prove my suffering stems from going through trauma that is normalized and not widely accepted as valid in our society. As VCUG survivors, our trauma is treated as a normal byproduct of something that was supposedly meant to benefit us in the long run. Our experiencing VCUG as traumatic is treated like a fluke in the system–a flaw of ours for perceiving it as traumatic. Subsequently, we are labelled as "sensitive," "dramatic," and "attention-seeking," among other things. Our trauma is not discussed or mentioned so we treat it as a secret that we carry with us throughout our lives. The secrecy that this trauma is treated with fosters a culture of shame surrounding it. This culture of shame is fueled by the reactions of others to our trauma. We are often gaslit, dismissed, and minimized each time we bring it up to the people in our life, let alone medical professionals. Because of all of this, we grow up not knowing that the events we experienced (i.e., VCUG) were traumatic. We go years living as people with severe trauma but not knowing it, so we feel like there must be something wrong with us; we feel like we must be broken and defective; we feel like we must prove our suffering somehow. When nobody believes your pain, not even yourself, of course you feel like you have to prove it to them. I haven't really engaged in self-destructive behaviours much since finding community and relational healing in Unsilenced. I want this blog to be a reminder–tangible proof, if you will–that our pain is valid and our trauma is not nonsensical. Any reaction to this merciless procedure is a completely warranted one. None of us deserved this and none of this should have ever happened to us. My favourite thing about this community is that everybody understands the suffering that comes with being a VCUG survivor–it need not be explained. Although our advocacy efforts require us to justify and explain our suffering, I'm eternally grateful to have a space I can always return to where I don't have to prove my pain to anyone.
WRITER: ANONYMOUS
"THE OFFENSE OF A STICKER"
CONTENT WARNING: VCUG, MEDICAL TRAUMA, SEXUAL TRAUMA
I’m sweating, my hair is sticky against my neck, and my thighs are stinging from the acidity of urine you’ve failed to fully wipe off my skin.
My stomach hurts and I'm still shaking from adrenaline as I try to hide my swollen eyes and splotchy face behind my mother’s leg. I can’t bear to look at anyone after what I’ve just done. I want to disappear. Every second I have to stand there as you clean up my mess is agony. I continue pressing my face into her leg as she struggles to zip my jeans back up.
But then I see it, your hand at first, reaching out towards me and I flinch, you ignore it. Then what you're holding, followed by your face, beaming at me.
A sticker.
One of the squares that you’ve torn from a large roll attached to the wall.
And I want to cry. The tears are welling again and it takes everything to not let them spill. “You're being mean” is all that comes to mind.
I was just fighting you. I hate you and you won. And now you're giving me a gift? A reward?
You’re cruel.
You’re rubbing it in my face. That I lost. That I’m small and you don’t care.
You invaded me up there but it wasn’t enough. You've come back just to prove it. That even with my clothes back on and clinging to my mother, you can reach me.
A sticker disguised as an award, but only I know it’s meant to show me my failure. To remind me that you are the winner.
Something I can look at when I try to forget what you’ve done, what I've done.
A secret memento between the two of us, reminding me that I'll be back and you’ll win again. Get away from me, I hate you.
WRITER: ANONYMOUS
"FINAL DRAFT"
They ask me what I need
and I say I don’t know.
What do you need from someone
who ruined you decades ago?
There’s nothing on the internet
no psych study or report
that says what to tell a loved one
who caused a lifetime of hurt.
Abusers never change, they say;
Beware ones who claim they have.
So why can’t I reconcile this You
with the remorseless ghost of my past?
The crossroads of our life
isn’t about the path less travelled.
It’s preferring to die rather than confront
knotted decades to be unraveled.
They ask me what I need;
I tell them I don’t know.
How does one rewrite a narrative
written for them many years ago?
Morbid curiosity about who I could have been
consumes my every thought
Do you also wonder who I’d be today
If the adults who hurt me had not?
Would I speak my mind more often
and smile at others on the street
instead of staring down at cement
praying no one notices me?
Would I feel included in conversation
without gravity dragging me down
without trauma dictating my every move
Flinching at unexpected sounds?
Would I sleep soundly through the night
no intrusive thoughts barging in without warning
without wanting to peel skin from bone
feeling powerless till morning?
If I asked you nicely,
would you kindly return my pen
So I can rewrite myself in my story;
reverse my premature end?
Or would you hold the narrative overhead;
ensure your side is all that’s said?
Tell me, will you ever come to regret
Watching me cling to my life
like the last fraying thread?
and when those quivering strings
begin to pop,
promise me you’ll remember her—
the little girl
that you forgot.
WRITER: DEREK
"THE HAUNTING"
CONTENT WARNING: VCUG, MEDICAL TRAUMA, SEXUAL TRAUMA
I lay here in my bed trying to sleep but sleep can’t find me. I keep replaying the words in my head. High creatinine. Kidney ultrasound ordered. Mildly hyper echoic. Indications of nonspecific chronic kidney disfunction. Is the reflux back? Has it returned? Maybe it never really resolved itself and it’s gotten worse. I close my eyes and it all repeats itself. I can’t sleep. I roll over and I’m sweating. The anxiety is seeping from my pores. You stole sleep from me. You stole a lot of things from me. I laid on your cold table and shook with sobs while you cleaned between my legs. I positioned myself as told. I screamed as you violated my eight-year-old body in the name of medicine. I cried hysterically. I screamed at you to stop, to take the tube out and you wouldn’t. You ignored me. You acted as though I was a dummy instead of a living, breathing child. The first time it happened, my mother told me I had to be still and do what I was told, or I’d be held down and even though I was only six, I knew that meant it would be worse. And at eight years old, I was begging you not to do it before you even started. But your mind was made up. I was there for you to do whatever you wanted. Maybe four feet tall and no more than sixty to seventy pounds, I was easy to manipulate if necessary. I didn’t want to be there. I wanted to be anywhere but there. My body bare from the waist down, I was cursed to lay on your cold table. I was restrained by my need to be a good child. Nobody glued me to that cold table except for myself. Be good. Be good. Be good. It was drilled into me from birth. Be a good child. Listen. Do what adults tell you to do. Don’t let anyone touch you there. They’re doctors though, so it’s okay. What was okay about it? What’s so okay about letting someone shoving a tube that felt more like a sword into my genitals just because they have a degree? What’s so okay about being violated by someone whose entire job is about helping children? What’s so okay about her smiling sadistically at the end and thinking that showing me the balloon at the tip was going to make me feel better? I’ve spent the last twenty-eight years in fear that it will happen again. In the past three years I’ve come to realize and feel empowered that I can say no and walk away. Now all of this talk of renal issues brings it all to a head again and because you chose to torture me while I begged you for mercy, I can’t sleep. I can’t get you and your table and your weapon and your smile out of my head. “Do no harm.” Did you miss that part of your oath? Did you not take it seriously? Do no harm, unless it’s a pathetic eight-year-old whose urine is flowing backwards towards the kidneys. Do no harm, unless that stupid kid is a complete basket case because then it’s just funny to proceed. I’ve forgiven you many times over the past few years and I still am forgiving you. I’ll never forget though. You stole so much from me that day. When I walked out the door, I left most of my innocence on that table. My ability to trust doctors, my sense of autonomy, my self-esteem, my self-worth. I’ve regained some of the trust and autonomy recently. I’ve taken back my body. But the innocence could never be replaced. I’ll never have all of the trust back. You stole things from me that I will never get back. You stole it in the name of medicine. All because I had to be a good kid. All because I couldn’t rock the boat or fight back. All because it was important that I obey and make adults happy. All because it was important to hear how well-behaved I was, how pleasant I was. You took advantage of that. There is a life that I will never know because of what you did to me. I’ll never know who I would have been if you didn’t torture me. The trauma you caused changed me drastically. Would I have been able to avoid being abused by my ex? Would I have maintained a life without crippling depression and anxiety attacks? I’ll never know. I’ll never know who I could have been if you hadn’t touched my body. They say our cells regenerate every seven years. If that’s the case, nothing you touched is on me anymore. Except it is. No amount of regeneration will get rid of your hands and your soap and your sword and the way you smiled at me when you finished your torment. No number of years, of decades, will erase the way you contorted my body and my mind. No concussion will shake it loose. No amount of time will give me back in full what you stole from me. You stole so much, and you sold it so cheap. Or perhaps you never sold it. Maybe it sits in a jar on your mantle for everyone to see. Yes, I see it now. You have your house parties and it’s the big talking piece. The day you completely destroyed a child in under one hour. See the pieces in this jar, you’d say. I stole these, pretty cool right? Laughing with your friends and colleagues as you remember it all. Perhaps you brought home little strips of film from the imaging and put in a photo album, wrote the date next to them, my name. Maybe you revisit them, marvel over how overfilled my bladder is in these images. Maybe you wrote how I had blonde hair, and brown eyes that turned black by the time you finished with me. The way you opened the door to watch me leave in utter shame. Sending me on to live a life of suicidal ideation, of anger that would take me years to get under control. Maybe you wrote about how my stomach sank the moment you stepped out into the waiting room to call my name. Or about how I spent my whole life hyper fixated on being good, so much so that I let you violate me because that’s what a good child would do. How you held so much power in those moments that I obeyed your every command and didn’t even try to fight you. One day maybe you’ll have an epiphany and burn those strips of film and those notes. Set them ablaze and watch the ashes float in the air. Maybe you’ll feel some sort of remorse for what you did to me. Maybe you’ll wonder what became of me and maybe you’ll realize that just because medicine says it’s okay to do what you did, morally it wasn’t. Do you see my face in your nightmares, too? Do you find yourself reliving those moments and trying to dream up how it could have gone differently if you’d listened to me? Do you mourn the me that could have been if you had left me alone? Did it change you? Do you think about who you’d be today if you hadn’t touched me? The reality of it all is that I’m not even a blip in your memory. I blend in with the faces of everyone you treated. I was nothing to you then, and I am nothing to you now. But I am somebody. You never thought so and you never will, but it’s true. I’m somebody. Despite what you thought, I was a living, breathing child then and I am a living, breathing man today. You ripped me apart like a puzzle shoved off a table, but I’ve put a lot of pieces back together again. There are pieces that I’ll never find, but I’m finding every last one I can. Even with all that you did, and the way you scarred the deepest fibers of my being, I still wish you well. I wish you peace and I wish you safety. I hope you never have to experience what I did, that your sense of safety and peace and being is not stolen so viciously by another person. As angry and bitter as I can be at times towards you, I forgive you. I forgive you every day. And I pray you ask God to forgive you, too. He will if you just ask Him. I’m going to end this letter and close my laptop. I’ll lay my head on my pillow, I’ll pray, pull one of my favorite blankets around me, and turn on my favorite comfort music. I’ll take a breath, and I’ll close my eyes. Now that I’ve said all to you that I want to say for now, maybe I can find sleep. And while I sleep, I won’t see your face or hear your voice. I’ll float into a space you’ll never find. A space where you won’t be able to hurt me again. A space where I can be free from everything that happened, and the memories don’t exist. A space of serenity and security. A space I’ve been needing and a space that is mine alone. Tonight, in that space, I will be safe, and I will be at peace.
WRITER: ASHLEY GROTH
"FOR HER"
AN ODE TO MY YOUNGER SELF
within me is a little girl
who should've grown up with me
but stayed little and stayed inside
she looks to me with sad eyes
she asks me questions
she repeats them helplessly
"why did they hurt me?"
"why don't they love me?"
i want to give her answers at least
but those answers i still don't know
ashley, it's like your father tells you at 7 years old
the world is a place cruel and cold
she places the blame on herself
because that is all she knows
i wish i could help her understand
none of it was ever her fault
still, she would ache beyond belief
unfair that it had to be me
i glare the unfairness in its eyes
but it laughs, unafraid and without compromise
i reach within myself for her
but she hides in the darkness most of the time
despite that, she is always there
i carry her and her pain with me everywhere
WRITER: ALIVIA
"WHAT DO MERMAIDS & I HAVE IN COMMON?"
A VCUG RETELLING BY ALIVIA D.I.
One moment, I was running on the playground at an elementary school. My classmates and friends' laughter fills the air. My friend called my name, so I ran to our secret spot under the slide. The playset is just how it always is, with vibrant and nostalgic colors in all the ways that elicit childhood simplicity. I turn to run to another part of the playground when the ground suddenly splits, the sky darkening into an empty gray above it. The cracks are jagged sharp and provide no purchase to hold onto when I trip, and I’ve no choice but to fall, the endless emptiness below almost matching the sky above perfectly. Everything falls apart. When I stand again, I’m not as close to the ground as I used to be. I am taller and older, and my hair is long. I’m not me anymore; I’m her. A clearing is ahead of me, and if I am facing north, far ahead, downriver, sprawling hills hold up a beautiful mansion. East of me are dark woods, sprawling as far as the eye can see, and west is the river that leads north. There are pathways that lead to every destination, even the tiny bridge that sits over the river, but not to the mansion. If I walk all day and all night attempting to reach that home, the sun will rise again, blinding my eyes for a moment before revealing I am no farther along the riverbank than when I started. The hills still stand far ahead, the mansion unreachable. Even if I never learned my lesson about the mansion, I eventually gave up trying and turned to walk the other pathways. Some days, I end up wandering the forest paths aimlessly. Some days, I sit in the river and cry. Those are the easy ones. Deep in the woods, farther south than I care to venture, is a facility. Cold cement walls are hidden within the woods, gated like a fortress. I avoid that lab because my life depends on it. I know what awaits me behind heavy doors, in those fluorescent lights that darken ever ominously. Sometimes, if I get too close in my wandering, one of the few others in the world will warn me away, and I feel like I can hear the cry of a small girl echoing through the trees. Once I hear that, the forest loses its comfort. The freedom of nature begins to change into a cage. White coats spill from the lab walls, eager for a new specimen to study, and I know they hunt me. It’s always only a matter of time before they succeed in their chase. On the days they fail, I am chased from the forest, forced to dive into the river into my cold, underwater reprieve. Undecorated monochrome hiding becomes the only thing I can cling to. What should be comforting, a place away from the white coats starts to feel like a crumbling roof. Even if I am safe now, I know that the moment I step foot on land, I risk being seen, risk being taken, and risk being experimented on. There are tattle tales here, just like there are on the playground. Three of them surround me and cry, “It’s her! There is something wrong with her! She’s not human!” Their cries drive me to hide even more, for I know the white coats pay close attention to their exclamations. They’ve learned to sit on the bridge and wait for me just to report me to the white coats. When I slip by them, my gaze always falls on the mansion. It sits proudly on top of that hill, untainted by the injustice taking place just downriver. Longing is all I can feel as I stare, dreaming of being inside those walls instead of one I am forced into or forced to hide within. The sun is always brighter there. Finally, away from the tattles, I must stay within the forest again. The clearing is too dangerous, but I can’t stand being trapped underwater for another day, so I take to foliage for cover. On unlucky days, this is where the inevitable takes place. I’m caught, bound, and dragged. The hands clutching me eventually grow bored of my struggling and administer a sedative. The forest fades as dread grows within my gut, but I am powerless, and this is what I know to be inescapable. When I wake up, I am in the lab. My body is heavy, disoriented from whatever they used to get me here, but I am upright. Ahead of me, there is an audience’s worth of chairs, all empty at first, but the white coats file in one by one to fill every seat. Bindings are attached to each of my wrists and ankles, and I am suspended in midair between two support beams, strung up like a starfish, exposed. Some researchers bring in pails of water, which they sit at my feet as if to taunt me for what comes next. The lights dim when every white coat has found its seat, except for the ones fixated on me. They announce the spectacle they will witness, proof of a mermaid's existence. They sit in their chairs, bodies stern but eyes hungry for the discovery they are about to make. The lights dim then, and someone walks up to throw the water on my legs, where my thighs would touch if they weren’t held apart. The pain begins like fire as my legs try to stitch themselves together, scales reaching to complete a tail but being prevented by the restraints. The agony between my legs is enough to force me to scream. The white coats think nothing of it but only throw more water. The pressure is debilitating, and it’s only a matter of time before I am unconscious again. As I fade from the present, I think I will fight harder next time. Perhaps they won’t be able to find me next time. Maybe someone will help me next time. I’m on the playground again, running and happy, but only momentarily. I’ve seen this story a hundred times before. The ground splits, I free fall, the clearing awaits, but so do the white coats. The mansion is ever unreachable, and I can only hope to escape the inevitable this time. The lights dim then, and someone walks up to throw the water on my legs, where my thighs would touch if they weren’t held apart. The pain begins like fire as my legs try to stitch themselves together, scales reaching to complete a tail but being prevented by the restraints. The agony between my legs is enough to force me to scream. The white coats think nothing of it but only throw more water. The pressure is debilitating, and it’s only a matter of time before I am unconscious again. As I fade from the present, I think I will fight harder next time. Perhaps they won’t be able to find me next time. Maybe someone will help me next time. I’m on the playground again, running and happy, but only momentarily. I’ve seen this story a hundred times before. The ground splits, I free fall, the clearing awaits, but so do the white coats. The mansion is ever unreachable, and I can only hope to escape the inevitable this time. The dream above began when I had my first VCUGs and repeated itself more times than I could count for ten years. As a young child, I considered myself a mermaid, even if I knew it wasn’t true. Why else would I be treated inhumanely? Why else would I be experimented on? Why else would that much pain between my legs exist so clearly in my memories? I would watch “mermaid spell” videos on YouTube and perform rituals in my bedroom with a glass of water, hoping to reveal the true identity hiding within me. Mermaids and I had so much in common. I didn’t want the white coats- doctors- to know about me. I didn’t want them to dissect me like they would her. Still, I couldn’t deny how much I identified with the concept. I knew what it was like to feel like you had to hide. Her watery bedroom was like the hospital rooms I kept waking up in. The drugs that the white coats administered were the multiple times I was under anesthesia for failed corrective surgeries. Her desperation to escape the white coats was like my desperation to escape a memory I couldn’t bear to remember as my own. The mansion was a physical representation of safety; her inability to reach it was my inability to feel it. I even knew what it was like to be stripped and tied down under dim lights. The water she felt between her thighs was the cleaning solution they used on my genitals. I knew what it felt like to be exposed, helpless, and looked upon without anyone attempting to help me. I knew how the fire between her legs felt. Or maybe I didn’t; my mind would tell me. Perhaps I didn’t go through any of it, and she did. Maybe, that’s why I showed all the signs of a childhood rape survivor, but all I had to show for it was the repetitive dream I always knew would come back and scars from surgeries and procedures I had as a child. Despite the horrifying torture she endured, I found comfort in that dream. I looked forward to having that dream, even hoping I would because the alternative was waking up screaming. I regarded the mermaid as a friend. I knew her, and she knew me, even when my brain had blocked the reality of my memories from itself. As I got older, she got away more and more. She formed allies with a ranger in the forest who helped her escape the white coats. She was strong. She understood what it was like when no one else did. Yes, she was different but beautiful and otherworldly, and she could escape. She was able to do what I never could. I desperately wanted to be able to do what she could. I am 24, at least 18 years older than my first VCUG. I’ve been to therapy and learned about the mermaid and what I have in common with her story. It’s a retelling of a trauma too terrifying for a 6-year-old to remember in its truthful state. As I got older, I remembered more and more of the story for myself, in all its horrifying details. I was riddled with panic attacks, depression, anxiety, suicidal ideation, and complete distrust of any medical professional. I avoided doctors at all costs, didn’t go to the dentist for ten years straight, and panicked at the thought alone of going to the gynecologist. I want to make this part very clear, without metaphors or storytelling. The VCUG broke me on a fundamental level. I lost my sense of safety in the world around me. I lost my sexual innocence. I lost trust in everything. I lost my confidence. I lost my smile for a long time. I lost memories, my sense of childhood, and the ability to dream for my future. I didn’t think that there was anything for me in life but to be inevitably tortured despite my best efforts. When I was 16, I wrote a suicide letter that I told myself wasn’t one. I thought, “Just in case I suddenly die, I will have something left behind.” I didn’t realize how close I was to planning ways to die. Only later, looking back, did I read that letter again and realize the weight behind it. There is so much I have had to grieve because of the 3 VCUGs I had. There were so many years I was haunted by this idea that I had been violently raped, but I knew that all I did go through was the VCUGs. My teen years were spent terrified of relationships because I was terrified of sex or intimacy of any kind. Instead of having my first kiss and being giddy and talking to my friends about it, I had an aggressive panic attack for hours afterward. I didn’t think that I would ever experience consensual intimacy. In my mind, I would only ever be used and violated. I’ve had to have pelvic floor therapy, counseling, and years of intentional self-work to have the relationship with my husband that I have today. I’ve gotten a lot better. I can even go to the doctor now, get blood drawn, and go to the dentist. I’ve learned to have a voice. When you are a kid, your voice doesn't matter to doctors. I’m an adult now, though, and they must listen to me, so I advocate for my comfort. I rebuilt myself, piece by piece, for years. I’ve been working on processing and recovering from this trauma since 2017- over six years. That doesn’t mean it doesn’t still affect me. I still shake as I write these words. I’m terrified of being pregnant. I am horrified at the thought of giving birth. I still don’t know if I could handle it or if it would break me again, and this time, I wouldn’t recover. Part of me will always be her. Even if I’m better, I’ll always know her pain. That’s the reality for all of us survivors. I can get better. I do have hope, but I will always live with this. Just like CSA survivors, just like rape survivors, we will have to live with this memory for the rest of our lives. It doesn’t go away. It doesn’t disappear. My body remembers it. My emotions remember it. Will I heal? I will make sure I do. The VCUGs have stolen too many years of my life and ruined too much of my peace. It violated too much of my body. I won’t heal easily, but I will. The girl who survived three of these tests in two years deserves to be fought for as much as I fought against the doctors. For every burst of rage that I feel towards what this test took from me, I will give an equal amount of compassion to the little girl inside of me who had to survive it. I will get better, if not for myself, than out of spite. I won’t be victimized or silenced by this test any longer. This is my story. I hope it makes you uncomfortable. It should disturb you. Parents, Please protect your child from this the same way you would protect them from sexual predators. There are alternatives. It breaks my heart to know so many kids are still going through these procedures each year, knowing the havoc it wreaked on me. Doctors, Do better. We deserve better.
WRITER: SHELBY
I "FORGOT" MY VCUG.
IT MADE NO DIFFERENCE.
October, 2022. I had no way of knowing the month would forever split my life into two halves: before and after. I was pregnant with my first child. We got the positive test on my husband's birthday, after months of trying. Almost immediately, I noticed a shift in my weekly therapy appointments. We had a new problem that needed solving: The overpowering, unexplainable rage I felt everywhere in my body every time I thought about my first prenatal visit. And the lies I told myself. The constant, desperate lies. Deep down, I must have wanted to believe them: That my pregnancy was only difficult because I'd been sexually assaulted, more than once, in college. That I have been protective of my body ever since. But that wasn't enough to alleviate the immense physical and emotional distress I was in. A lot of people don't understand the ugliest parts of trauma recovery—not unless they've lived them or supported a loved one who has. Healing isn't always pretty, especially when it involves sexual trauma. For me, the anger was often uncontrollable, yet directed at no one in particular. But I was incredibly angry. Angry enough to chuck my stupid copy of What to Expect When You’re Expecting book across the room and burst into angry tears, all while I resisted the urge to punch the wall. Why? I had just tried to read the chapter explaining what happens at a woman’s first prenatal appointment. And all I could think was: Don’t fuc*king touch me. I will NOT let you touch me. You will NOT come near my body. I started to panic. It felt like I was already stripped naked on an exam table, with freezing hands and objects and instruments shoved up inside me. It took all my energy not to explode. I can’t do this, I thought, knowing it wasn’t true; I would do anything for my child. But at that point, I knew. I knew I had no choice but to accept that there was something else going on here. Something more complicated than sexual assault in young adulthood. The feral rage, barely containable, made it hard to see straight. My stomach churned when I realized how far back it went—that raw, violating "feeling" I felt all over; the same feeling that made me want to peel the skin off my body. It made me remember my many visits to the pediatrician’s office. Eighteen years of them. And at all of them, I behaved the exact same way. I put my dumb pregnancy book down for the last time. I texted my therapist. It was time to face the music. It was time to figure out where it all went wrong. VCUG TRAUMA: THE MISSING PUZZLE PIECE My good friend and co-founder, Mollie, used a metaphor for VCUG trauma that really resonated with me: finding the lost piece of your puzzle. She explains in her interview that many former VCUG patients spend their lives carefully assembling pieces of their puzzle, searching for answers—knowingly or otherwise—to explain their lifelong hardships. Suicide attempts. Depression. Self-harm. A paralyzing fear of doctors, intimacy, and childbirth. The VCUG test is usually the last piece of the puzzle, and it can take a very long time to find. I’m no exception. “I don’t know what’s wrong with me,” I told my therapist at our next appointment. I was agitated, impatient, anxious; I couldn't stop bouncing my knee against the floor. “I just always thought I was…I don’t know, a private kid.” It sounded dumber out loud, but it was the only explanation I had at the time for that feeling. The one that made me dead silent at every doctor’s visit, that made me angry-cry at every age, that filled my young body with enough rage to murder a village. I fought and fought and fought with my parents before every visit. It was never any use. And I knew exactly what would follow. I thought obsessively of it up until the moment it happened. My pediatrician, telling me to lie down on the table. My face burning deep scarlet with anger and humiliation. That brief second where I strongly considered screaming, “NO!” but my mom’s stern gaze from across the room made me think better of it. My pediatrician’s freezing hands down my pants, her back always angled toward my mom and sisters so they couldn’t see. “I’ve read everything online, and I can’t tell if what happened to me was abusive,” I pointed out. “Some articles mentioned that pediatricians do touch kids…well, down there, but they also said it's shady if the doctor doesn't look where they’re touching, because what’s the point of that? Or if they angle their backs to block the parent's view, because then…” I shook my head impatiently. “Ugh, I hate this! I hate her. I HATE remembering her touching me." I stopped, stunned at the volume my voice had reached. What the hell is going on? My therapist kindly validated my fears, and at the end of the session, we settled on a neutral conclusion that gave me peace of mind without the guilt: I wasn’t sure if my pediatrician’s behavior constituted sexual abuse, but at the very least, whatever took place was inappropriate, and my body was clearly trying to tell me so. I wish I'd known that I had hours left before everything changed. THE TRUTH WILL SET YOU FREE Arriving home after therapy, I felt much more calm and collected, chattering to my unborn baby as I cooked my lunch, giving them the low-down on our family. In my cupboard sat two mugs titled “Grandpa” and “Auntie” for my dad and best friend, the perfect gifts to pair with the sonogram photo I yearned for, but would never receive. I made a spreadsheet with my health history. It calmed my anxiety about my intake call with the hospital. My therapist helped me practice what I would say over the phone: I struggle with these appointments because I was raped. What accommodations or resources do you offer for women who have been sexually assaulted? (Spoiler alert: The answer was a dead, ringing silence from Baylor Scott & White. Unbelievable, given the stats.) My mom called. I almost let it go to voicemail; I had to get back to work soon. Shrugging, I decided to take the call anyway, wanting to fill her in. When I admitted my anxiety about the appointment, tying it to the same feeling I had at the pediatrician’s, she offered me an alternative explanation for my aversion to prenatal care. Her explanation wasn’t a theory. It was a memory—one that I’d dismissed as a bad dream a long, long time ago. I heard, “Well, you did have this procedure…You were very little, and it was horrible. It was so horrible," and time stopped moving. My voice stopped working. For what felt like years, I stood frozen in place, completely dissociated, staring mutely out the window. I don’t remember what I saw; I was reliving the words I was hearing on the other end of the line, taken word for word out of my recurring childhood nightmare. A PTSD nightmare. Today, all I can remember are chunks: “…kept getting UTIs…The nurse said it was a traumatic test, but I thought…They couldn’t have been more compassionate to you, but…You were so inconsolable, you were so upset, you were screaming and crying, and they had to sedate you…was just terrible…” Say something. Even the voice in my head sounded hollow. SAY SOMETHING. I couldn’t. Another minute went by as I relieved every physical sensation, felt the adults holding down my naked body, felt the unmistakable sensation of penetration—an unimaginable and agonizing feeling that no 2-year-old has a name for, but a feeling I had relived for over a decade in nightmares. When the horrific bodily sensations pushed my body to the brink, when I could no longer afford to stay silent, I finally got words out: “STOP. Stop.” My fingers were shaking violently; my voice sounded miles away from the phone pressed against my ear. “I remember that. I remember. I remember all of that, okay?” I didn't realize I remembered every part until I said the words aloud. The next thing I remember was hanging up the phone. I walked, trance-like, into the bedroom. Opened my dresser drawer. Stared dumbly at my running clothes. I could go for a run. No. It already hurt to breathe; the oxygen was like fire in my lungs. I could self-harm. It was tempting; I started self-harming in fifth grade just to get rid of awful feelings just like these. I could...go for a drive. Thankfully, the next thing I knew, I was in my car. The next moment, I was on a back road I’d never been on before. I glanced beside me, realizing how parched I was. My semi-clear water bottle was sitting innocently in the cupholder, but the sight of the water sloshing with the winding road made me sick to my stomach. A fresh wave of suicidality crashed over me. Now that I'd remembered, all I wanted to do was forget. My fingers were white around the wheel; it took every ounce of willpower not to sling the water bottle out the window. I refused to look at it again, convinced I’d throw up. Every time I saw the water sloshing around, I was back on the table, reliving the overpowering feeling of being violated, painfully and forcibly, over and over again. I called my therapist, praying she wouldn’t answer; she didn’t. I left a voicemail requesting her first available appointment. I didn’t realize I had called my husband until I heard his concerned voice on the other end of the line; only then did I realize how hard I was sobbing, how impossible it was to catch my breath long enough to speak. When I finally got some words out, they were the only ones I had. I repeated them like they were a lifeline, my last tether to reality: “I was two. I was two. I was two. I was two.” My voice finally broke. All I could do was cry. How could they do this to a toddler? How could they do this to me? Then, I remembered that I was pregnant. It felt like my stomach sank all the way to the pedals below my feet. My eyes wandered to the water bottle; I quickly fixed them back on the road, angry as the unbearable bodily sensations returned. My excitement about my pregnancy was gone, replaced by a raw, animalistic, deep-seated horror. What the hell am I going to do? BUT FIRST, IT WILL PISS YOU OFF The next several months would end up being the worst of my life. I’ll spare you the disturbing details of my initial recovery, which mostly involved reliving the physical bodily sensations of the procedure. Up until that point, I had never truly understood what was meant by the PTSD symptom: Reliving past trauma like it’s happening in real time. It happened, and it happened often. It nearly killed me. In those months, I self-injured significantly more than I had in the last few years combined. I would have done anything to stop feeling the men’s hands holding my legs down and open, ignoring my screams when they penetrated me, then pumping my bladder painfully full, telling me I had to “hold it” or we’d have to start over. Watching the blurry men hovering over my naked body in my nightmare certainly wasn’t fun—there’s nothing quite like being utterly unable to move your arms or legs while enduring pain you have no words for—but it was the disturbing instrumentation of my body, the violation itself, that truly horrified me. This time, it was all that and worse—physical pain, and the awful knowledge that it really, actually happened. That my parents let this happen to me, then spent the rest of my childhood disciplining me for behavioral problems that were the direct result of the voiding cystourethrogram test I received on July 14, 1997. Now, bear with me. Here’s where it gets interesting. THE LITTLE GIRL WHO FORGOT What are the effects of VCUG trauma on a child who develops dissociative amnesia after her VCUG? If you’re reading this, you’ve probably also read The Body Keeps the Score by Bessel van der Kolk. His words are true. Truer than true. I can't stress that enough. My body kept the score. Most providers reassure parents that kids are “too young” to remember their test. But they discount the intensity of the trauma that makes these children forget. Forgetting boring, routine events is not the same as forgetting life-shattering trauma that your mind can’t bear to remember. After the VCUG, I imagine my brain exclaiming, “Keep this in our long-term memory? Fuc*k that!” and booting the entire day out the door, or trying to. Reducing it to a recurring bad dream was the best it could do, ramping up its effort with self-doubt, which intensified the older I got. Well, if I DID have a major vaginal surgery, my high-school self thought nervously, SURELY Mom or Dad would’ve told me that. Right? Also, why on earth would a little kid need a surgery like that? What’s the point? And…on and on and on. The message from my brain and body couldn’t be any clearer: Deny, deny, deny. But the body can only deny so much. And it was only a matter of time before my brain caught up. BEFORE & AFTER “I wish I never found out about this stupid test” are bitter words I’ve said aloud many times. Looking back, I realize I never truly meant them. That isn’t to say that healing from VCUG trauma isn’t the most difficult thing I’ve ever had to do (it is) or that this test didn’t completely ruin my childhood (it did) or that I didn’t suffer adverse health effects as a direct result (I did). But if I hadn’t found out about the VCUG test, I have no doubt the highway of my life would’ve ended in a catastrophic crash—a self-created one. The first time I remember wanting to die, I was 11 years old. But the lifelong dissociation, the alien isolation, and the mind-numbing terror I experienced at every single doctor’s visit were nothing new. When I traced them back, I would lose sight of the thread—that is, until I heard “VCUG” for the first time. I may have “forgotten” my VCUG for 27 years, but I essentially lived the same life as other former patients. I experienced the same adverse health consequences as the little girls who did remember. And that’s why I’m writing this today. Everything I was as a child was exactly how the made VCUG made me: I was overly private and protective. I never undressed in front of anyone. I would yell angrily at siblings or parents who accidentally walked in on me changing. I was potty-trained. Then, I regressed. If you walked into my childhood bedroom in the early 2000s, you'd find an oversized stuffed rabbit tangled up in my comforter. It was a bribe from my parents to stop wetting the bed, which I did for weeks immediately after my procedure (developmental regression is a common effect of childhood trauma). My embarrassment as the eldest daughter was nothing compared to the humiliation of visiting the pediatrician, where I sat in ashamed silence as my doctor clipped an alarm to my underwear, cheerfully explaining that it would wake me up every time I wet myself. While my parents didn’t know they were “bribing” their daughter to stop showing signs of PTSD—to stop having the VCUG nightmare that was causing the bedwetting—it certainly didn’t help my self-esteem or validate my experience, intensifying my shame and confusion. I cannot lie on my back. As a child, I slept like anyone could rip away the comforter at any time and penetrate me. For as long as I can remember, I have always slept belly-down, blankets pulled up tightly over my head, always high enough to cover my ear; I didn't want to leave any penetrable part of my body exposed. If I must lie down, such as at the dentist’s or getting an eyebrow wax, my legs will always be firmly crossed, my hands clasped over my waist so I will immediately feel any contact below my stomach. When I took swimming lessons as a kid, I was the only child who couldn’t float on their back. (Still can’t. How on earth is any former VCUG patient supposed to “relax” enough to do that? Give me a break.) I was sexually compliant. The majority of my sexual experiences were not consensual. Every time, I blamed myself for not vocalizing “no.” In the moment, I couldn’t speak—partly due to physical difficulty, and partly because I was terrified of the reaction I would get. I was too afraid to disappoint boys out of fear that they would proceed anyway, and more violently at that. It took many years of therapy to heal from the perspective that VCUG gave me and forgive myself for not vocally dissenting to sex. I didn't really see "no" as a viable option. (And why would I? It certainly wasn't an option when I was 2.) I hated and punished my body. I showed symptoms of anorexia for many years, obsessively calorie-counting, over-exercising, and constantly comparing myself to other girls. I skipped lunch at school where my parents had less control over me. When I looked at myself in the mirror, the word “fat” came to mind every time. One of my strongest memories in high school is sitting rigidly in every chair, never leaning all the way back in my seat, because I was mortified by how fat and pale my thighs were. Transitioning into swimsuit season as a teenager was when my self-harm became exponentially worse. No matter what, I loathed the girl I saw in the mirror. I never understood the concept of consensual sex. My first “sexual” experience made me fear for my life in the medical setting. In my brain, sexual intimacy will forever be associated with excruciating pain, embarrassment, and medical trauma. I can't wrap my brain around the concept of sex as pleasurable, let alone understand sexual fantasies or any other enjoyable element of consensual intimacy. COMPLETING THE PUZZLE Dissociative amnesia isn’t a free pass to “erase” trauma. It doesn’t help you outrun the lifelong effects. It doesn’t rid your body of the horrific sensations. It doesn’t benefit you in any way. All it does is delay the inevitable—and with every passing second, the risk of never reconciling your mind and body gets higher and higher. Your risk of being diagnosed with cancer, heart disease, and other life-threatening illnesses goes up. Dissociative amnesia isn’t about missing pages. It’s about adding blank pages in the middle of your story, distancing you from the truth of your lived experiences. Separating you from essential knowledge that is absolutely necessary for you to finally heal. You feel like an alien in your family, but you don’t know why. You can’t get anything right in romantic relationships, but you don’t know why. You’re overly compliant and obedient, but you don’t know why. You can’t seem to choke out the word “no” the first time a boy touches you without permission, and you don’t know why. You develop chronic illnesses, but medical professionals don’t know why. You can’t see an OB/GYN without having a panic attack and sobbing in the parking lot, but you don’t know why. You can’t enjoy intimacy with your spouse without feeling violated and confused, and you don’t know why. Your entire life, you’ve experienced issue after issue after issue. You’re the only kid who can’t get it right. And as you stumble in circle after circle, desperately scanning for the root of your problems, you see none. So you look in the only place you haven’t searched: yourself. Your dawning awareness goes off like alarm bells in your brain: Ding-ding. Winner. Once it sinks in, there’s no stopping the thought pattern from ingraining itself in your core: You’re the thing that’s wrong. It’s you. You’re the disobedient child. You’re the bad girlfriend. You’re the lazy student. You’re the idiot who stayed with him. You’re the girl who didn’t say no. You’re the deformed body that will never be thin enough, tan enough, strong enough, sexually appealing enough. You’re everything that’s wrong with you. Having dissociative amnesia didn’t spare me from the effects of VCUG trauma. It simply made me take the VCUG’s place as the original source of my pain. It made me the ugliest and most shameful part of my story. I’m angry that an unnecessary medical procedure inflicted harm on my life. I’m angrier that it made me the villain in my own story. That it separated me from my authentic self. That no one bothered to rescue the little girl who continues to relive her experience on that table. The VCUG destroyed my relationships with my family. It dissolved my self-esteem. It made me extremely susceptible to abuse. I have a laundry list of unfortunate life events, once a streak of bad luck; now, the predictable outcome of my childhood procedure: Stalking, domestic violence, self-harm, sexual assault, autoimmune diseases, substance misuse. I’m a walking testament to the adverse health effects of childhood trauma. I’m living proof of the real harm of VCUG. It took over a year for my neurons to finally stop firing, to stop reconnecting 27 years of dots that once led to me as the sole cause. Now, all roads lead to the voiding cystourethrogram test I received in 1997. If I had remembered every detail of my VCUG, I have no doubt I would’ve suffered the same adverse effects I already have. Forgetting the VCUG made no difference. But I hope my story does.